• debigee

    I believe the families of these extremely developmentally disabled children don’t want to be burdened with 24/7 care. This overwhelms them and makes them feel trapped. How can you have a normal life? In the institution you have trained nurses taking shifts and they can go home and sleep. They get paid, get insurance and have some weekends off. By living at home will the disabled get care from nurses that come to the home? How are parents that are older or retired even physically able to take care of their disabled child? I’d the home designed for a disabled person?

    • Rebecca Underwood

      WOW! How insensitive and cruel to assert that we just didn’t want to be “burdened”. You have not walked in our shoes all these years and definitely have no clue as to the complex medical needs of not only my son, but of all the other CWC folks. I invite you out to CWC for a day to follow our son through all his personal cares and medical interventions and then you can decide whether we just didn’t want to be “burdened” or whether our decision was based on what would be best for Aaron and his quality of life.

      • Karol French

        Rebecca,
        I surely believe that your decisions for Aaron are made for his quality of life and what is best for your son! I am confused by Gov. Walker’s budget cuts and the explanations that the media is using. Is Aaron’s care going to be changed as a result of the cuts because you will be made to change an insurance carrier or even not be allowed to decide where or how Aaron is care for?

        • Rebecca Underwood

          At this point no changes have been announced at CWC.

      • Nathan Piontek

        I don’t think debigee is suggesting that you “just don’t want to be burdened” or are trying to shirk your responsibilities as a parent. She’s pointing out the fact that 24/7 care is a difficult burden on a family, and long-term institutions such as CWC are better equipped with full-time staff who are able to work in shifts to avoid fatigue. A family responsible for this level of care would not have the same luxury.

        I’m glad these organizations still exist, and at least for now, will not be too affected by the current budget. I have no doubt services like this and your continuous love and support have had an immeasurable impact on Aaron’s day-to-day quality of life. Best of luck to you and your family!

  • cheyl elkinton

    I believe the taxpayers don’t want to be burdened and his home state should be sued for what it took to keep him alive.

    • Gina Cerino Bear

      Wow lady. “Keep him alive?” You are a heartless beast, at best.