Wisconsin Saib yog chav xov xwm tsis muaj txiaj ntsig uas tsom mus rau tsoomfwv kev ncaj ncees thiab teeb meem ntawm lub neej zoo. Sau npe rau peb tsab ntawv xov xwm rau ntau zaj dab neeg ncaj nraim rau koj lub inbox. thiab pub los txhawb peb qhov tseeb-kuaj sau xov xwm.
Crystal Pauley, tus kws kho mob yav dhau los, tsis ntseeg qhov hu ua Tus kab mob Lyme - mus txog thaum nws mob.
Ntau tus kws kho mob tsis lees paub tus kab mob Lyme ntev li kev kuaj mob. Ib qho kev tshawb fawb xyoo 2010 pom tias tsuas yog rau ntawm 285 tus kws kho mob thawj zaug tshawb fawb hauv Connecticut - ib qho chaw tseem ceeb rau tus kab mob zuam - ntseeg tias cov tsos mob ntawm tus kab mob Lyme tseem nyob tom qab kho lossis tsis muaj qhov kuaj pom Lyme zoo.
Thaum Pauley ua haujlwm rau La Crosse, Wisconsin-based Gundersen Health System, nws nco qab hnov txog ib tug phooj ywg los ntawm tsev kawm ntawv theem siab sib ntaus sib tua mob Lyme hauv Australia. Tab sis nws muaj nws tsis ntseeg. "Kuv tabtom ua haujlwm hauv kev kho mob," nws hais. "Peb yeej tsis tau kawm txog qhov ntawd."
Ntau xyoo tom qab, Pauley tau hloov nws lub siab. Pauley tau kuaj pom zoo rau Lyme xyoo 2020. Nws raug kev txom nyem los ntawm kev qaug zog tsis tu ncua, mob pob qij txha thiab lub hlwb pos huab. Nws taug kev nce ntaiv rau sab vim yog mob lub hauv caug tsis tuaj yeem. Pauley tau hais tias nws tau dhau los ua "pseudo-Lyme literate" vim yog nws tus kheej taug kev.
Pauley yog ib pawg ntawm cov neeg mob uas muaj cov tsos mob zoo li Lyme tab sis cov txiaj ntsig tsis zoo lossis cov neeg mob uas muaj cov txiaj ntsig zoo uas raug kev txom nyem los ntawm cov tsos mob ntev tom qab kho. Lawv hu nws tus kab mob Lyme, thaum Lub Chaw Tiv Thaiv Kab Mob thiab Tiv Thaiv tau sau nws li Tom qab Kev Kho Mob Lyme Disease Syndrome (PTLDS). CDC hais tias tsis muaj kev paub txog kev kho mob.
“Lawv cov tsos mob yeej ib txwm muaj tiag. Lawv tab tom ntsib lawv, "hais tias Dr. Joyce Sanchez, tus kws tshaj lij kis mob-tus kws tshaj lij ntawm Medical College of Wisconsin uas kho cov neeg mob Lyme nrog cov tsos mob tsis tu ncua.
"Yog hais tias ib tug neeg muaj cov tsos mob ntawm lub cev thiab tsis hnov qab, ces lawv yuav muaj kev cuam tshuam txog kev puas hlwb thiab tom qab ntawd qhov ntawd yuav cuam tshuam rau lawv lub cev kev noj qab haus huv," nws hais. "Thiab tom qab ntawd nws yog qhov kauv uas yog tias koj tsis hais txog ob qho tib si ntawm kev noj qab haus huv, koj yuav tsis muaj kev vam meej ntau ntawm ob tog. Thiab lawv yuav mob ntxiv mus. "
Wisconsin Watch tau tham nrog tsib tus neeg mob hauv Wisconsin, txhua tus poj niam, uas tau tshawb nrhiav kev siv tau thiab sim nrog kev kho tus kheej raws li ib feem ntawm kev sib ntaus sib tua ntev thiab qee zaum muaj mob hnyav. Tus kab mob no los ntawm cov zuam me me uas feem ntau pom nyob rau sab qaum teb Tebchaws Meskas, suav nrog hauv Wisconsin - uas yog qhov chaw kub kub rau Lyme, qeb thib 5 ntawm cov xeev rau cov mob Lyme xyoo 2019.
Ib ntawm tsib qhov kuaj pom zoo rau Lyme siv qhov kev sim ob-kauj ruam pom zoo los ntawm US Lub Chaw Tiv Thaiv thiab Tiv Thaiv Kab Mob. Peb lwm tus tau kuaj pom zoo siv qhov kev sim tsis pom zoo los ntawm CDC. Tus poj niam thib tsib tau kuaj pom tias muaj peev xwm raug mob los ntawm tus kws kho mob "Lyme-literate".
Cov tsos mob dav dav
Tag nrho ntawm tsib tus neeg mob sib koom ua ke. Lawv yeej tsis tau pom qhov kos npe "bull's eye" ua pob nyob ib ncig ntawm cov zuam tom, lub cim ntawm tus kab mob Lyme, uas pom hauv 70% mus rau 80% ntawm cov neeg mob. Tab sis tsis tshua muaj kev cuam tshuam ntawm rheumatologic, mob plawv thiab paj hlwb tau ua rau lawv lub neej flattened. Ib txhia ntawm lawv yav tas los haum thiab noj qab nyob zoo.
Pauley, 37, uas yog ib tug menyuam kawm ntawv tau txais cov ntawv kho mob, pib muaj teeb meem nco ntsoov cov lus qhia yooj yim. Nws muab cov ntawv nplaum nyob ib puag ncig nws lub chaw ua haujlwm kom ntim nws lub cim xeeb.
Alicia Cashman, 57, khiav Madison Area Lyme Support Group. Nws nco qab txog qhov mob pelvic uas tsis tuaj yeem tshwm sim thaum xyoo 2010. "Qhov no ua rau mob hnyav uas ua rau koj xav tuag," nws hais.
Qhov mob metastasized sai sai. Nws hnov mob pob qij txha, mob taub hau, insomnia thiab qaug zog heev. “Nws yog qhov phem heev uas kuv tsuas xav nyob hauv chav tsaus ntuj uas tsis muaj ntxhiab tsw, tsis muaj suab, tsis muaj teeb. Koj lub cev tau succumbed rau qhov no, "nws hais.
Shelbie Bertolasi, 47, yog leej niam nyob hauv Waukesha nrog plaub tus menyuam hnub nyoog 5 txog 24. Txog li xya xyoo dhau los, nws noj qab nyob zoo thiab daig rau kev ua haujlwm niaj hnub.

Bertolasi txoj kev noj qab haus huv tsis tu ncua pib thaum ntxov 2015 thaum nws nchuav menyuam ntxaib. Tom qab ntawd, nws tau kub taub hau, nrog mob plab thiab plab hnyuv. Nws poob 30 phaus hauv ib hlis vim yog raws plab tas li. Cov kws kho mob tau tshaj tawm thiab kho cov kab mob ntau dhau hauv nws cov hnyuv. Nws tau zoo dua tab sis maj mam raug mob los ntawm qhov mob tsis tu ncua hauv nws cov pob qij txha, nraub qaum, hauv caug thiab lub duav.
Qee zaum, nws poob siab hauv nws txhais taw. "Nws yog ib qho teeb meem thaum koj nyob hauv nruab nrab ntawm (tsav tsheb), thiab koj tsis tuaj yeem hnov tus pedals zoo," nws hais.
Judy Stevens, 52, ib tug qub tsev kawm ntawv tus kws pab tswv yim thiab kws kho mob hlwb los ntawm Wauwatosa, hais tias tsis ntev tom qab nws txiv poob, nws raug mob los ntawm kev sib koom tes, lub hlwb pos huab, insomnia, plaub hau poob thiab hmo ntuj tawm hws. Nws yog ib tug neeg ncaws pob, tus kws qhia hla teb chaws hauv tsev kawm ntawv thiab triathlete.
Tsis muaj leej twg ntawm cov poj niam no nco qab pom tus zuam, tsuas yog Jessica Croteau, uas nyob hauv Rice Lake. 34-xyoo-laus pom tus zuam ntawm nws lub caj dab thaum lub caij ntuj sov xyoo 2019 hauv tsev thiab pib muaj cov tsos mob xws li mob khaub thuas, tab sis nws tau kuaj tsis zoo rau Lyme. Croteau raug mob kub taub hau qis, mob caj dab thiab mob plab. Nws tau mus xyuas chav xwm txheej ceev thaum nws cov ntshav nce siab.
Mus down 'luav qhov'
Feem ntau, cov neeg mob Lyme muaj ntau yam tsos mob uas ua rau lawv qhov kev kuaj mob nyuaj. Lawv dhia los ntawm ib tus kws tshaj lij mus rau lwm tus los daws txhua qhov teeb meem, tab sis txhua qhov kev kuaj mob tsis tuaj yeem piav qhia tag nrho cov tsos mob uas lawv tab tom ntsib.
Cashman tau txais MRI vim nws mob plab pelvic hnyav, thiab cov txiaj ntsig tau pom ob lub hlwv ntawm zes qe menyuam uas tuaj yeem ua rau mob hnyav. nyob rau hauv lub plab mog. Tab sis qhov kev kuaj mob ntawd tsis tau piav qhia txog qhov mob tsis txaus ntseeg uas ua rau nws lub hauv caug thiab nws lub taub hau. Nws nco qab tias lub hauv caug o "tau liab kub rau kov," thiab nws ua npaws. Cashman pib nrhiav qhov laj thawj. "Tsis yog txhua yam yog Lyme, tab sis txhua yam tuaj yeem ua tau (Lyme)," nws hais. "Nws yog ib qho txawv, tab sis koj yuav tsum mus rau hauv cov luav qhov."
Croteau pom cov kws kho mob tshwj xeeb, suav nrog cov kws kho mob xwm txheej ceev, kws kho plawv, kws kho mob raum thiab kws tshuaj tiv thaiv kab mob. Txhua qhov kev ntsuam xyuas nws tau ua tsis zoo rau tus kab mob Lyme. Nws tau hais tias cov teeb meem yuav cuam tshuam nrog cov teeb meem puas siab puas ntsws.
"Yog li qhov yooj yim, nws tau dhau los ua lub sijhawm ntawm ob xyoos uas tsis tau ua tiag tiag, tsuas yog thawb tawm - txawm hais tias kuv ua tsis tau rau koj (lossis) tsis muaj ib yam dab tsi phem rau koj," Croteau tau hais.

Tus kws kho mob tau hais tias nws nrhiav kev sab laj thiab nce nws cov tshuaj tiv thaiv kev ntxhov siab. Tab sis qhov mob nyob rau hauv nws pob qij txha thiab dab teg yog tiag tiag, thiab nws knuckles feem ntau tau o. Lub paj hlwb ua rau nws nyuaj rau nws ntaus tus lej xov tooj kom raug.
Bertolasi pom tus kws kho mob tshwj xeeb, kws kho mob hlwb, tus kws kho mob txha caj qaum thiab kws kho mob hlwb. Lawv kuaj nws nrog SI kev ua haujlwm tsis zoo. Kev phais nraub qaum, kev kho mob thiab kev tawm dag zog qee qhov ntawm nws qhov mob, tab sis nws lub hauv caug tseem mob. Nws tau hais tias, "Koj laus lawm, (yog li) tej yam tsis ua haujlwm zoo li lawv tau ua."
Tsis txaus siab, xyoo 2019, Bertolasi tau pom tus kws kho mob rheumatologist uas tau xaj ntau qhov kev sim, suav nrog rau mob caj dab thiab mob lupus, thiab cov txiaj ntsig tau zoo tag nrho. Thiab qhov tsis nco qab tau txuas ntxiv mus; nws tau tso nws lub xov tooj rau hauv lub tub yees.
"Koj tsuas yog nyob ib puag ncig los ntawm qhov tsaus ntuj no (lub hlwb) huab cua, thiab koj tsuas yog tsis paub yuav ua li cas taug koj txoj hauv kev," nws hais.
Tom qab pom nyob ib ncig ntawm 30 tus kws tshaj lij, Stevens muaj ib lub hnab tshuaj, suav nrog ntau cov tshuaj kho mob hlwb. Nws tau mus rau cov tshuaj no, thiab nws cov tsos mob puas siab puas ntsws hnyav zuj zus. Txawm li cas los xij, nws tsis thuam cov kws kho mob, uas feem ntau tshwj xeeb hauv ib cheeb tsam ntawm lub cev lossis tsev neeg muaj kab mob.
Nws tau hais tias "Thaum koj muaj tag nrho cov tsos mob tshwm sim, nws nyuaj rau cov kws kho mob kom khawb tob," nws hais.
Qee lub sij hawm, cov neeg mob uas muaj cov tsos mob waning thiab waxing tau sau tias yog malingerers uas yog cov tsos mob tsis zoo kom tau txais kev mloog. Stevens tau hais tias "Qhov no feem ntau tshwm sim rau cov neeg mob Lyme,"
Sanchez, tus kws kho mob kis kab mob, txhawj xeeb tias cov neeg mob uas tsis tau txais cov lus teb los ntawm cov tshuaj tseem ceeb tuaj yeem ua rau tsis muaj pov thawj - thiab kim - lwm txoj hauv kev. Tab sis nws pom tsis muaj kev phom sij hauv qee cov tswv yim uas yuav pab tau, suav nrog kev xav, tai chi, acupuncture lossis massage therapy.
Tsis muaj kev tsim kho kom nrawm
Ob ntawm tsib tus poj niam xam phaj los ntawm Wisconsin Watch tau kuaj pom los ntawm CDC's kev sim ob-kauj ruam Kev tswj hwm: ELISA kuaj ua raws li Western Blot, ob txoj hauv kev sib txawv ntawm kev nrhiav Lyme cov tshuaj tiv thaiv hauv tus neeg mob cov ntshav. Pauley tau kuaj pom zoo rau Lyme siv CDC cov qauv pom zoo, thiab Stevens tau kuaj pom qhov zoo ntawm ib qho ntawm ob qhov kev sim.
Ob tug lwm tus siv lub chaw soj nstuam uas tswj cov kev sim tib yam tab sis siv cov txheej txheem tsawg dua los txiav txim seb tus neeg puas muaj Lyme. Cashman thiab Bertolasi ob leeg tau kuaj pom zoo los ntawm qhov kev sim ntawd. Ib xyoo 2014 Columbia University txoj kev tshawb fawb pom tias qee qhov chaw sim siv lawv tus kheej cov qauv qhia ntau qhov txiaj ntsig tsis zoo - 57% - ntawm cov neeg uas tsis muaj keeb kwm ntawm Lyme dua li 25% tus nqi cuav-zoo siv CDC cov qauv. Croteau tau siv peb lub chaw kuaj mob sib txawv tab sis kuaj tsis zoo txhua zaus.
Nrog rau kev kuaj mob Lyme, Pauley coj tus qauv kev kho mob, doxycycline, rau peb lub lis piam.

Tab sis thaum nws ua tiav txoj kev kho tshuaj tua kab mob, nws xav tias phem dua. Thaum nws nco tau zoo lawm, nws tau mob nqaij, thiab nws lub hauv caug raug mob ntau dua. Nws nkees nkees, hais tias nws tuaj yeem pw 10 mus rau 16 teev hauv ib hnub. Tab sis nws tus kws kho mob, ua raws li tus qauv txheej txheem, tau hais rau nws tias nws tau ua tiav nrog kev kho mob.
Tib yam tshwm sim rau Stevens. Tus kws kho mob tau sau tshuaj rau nws 30 hnub ntawm doxycycline thiab qhia tias nws mus nrhiav tus kws kho mob "Lyme-literate" vim nws tsis tuaj yeem sau tshuaj tua kab mob ntev dua.
Stevens tus kws kho mob tau ua raws li CDC cov lus qhia, uas pom zoo tawm tsam kev kho mob ntev ntev, hais tias kev puas tsuaj ntau dua qhov txiaj ntsig. Sanchez tau hais tawm qhov kev sib cav, hais tias cov kws kho mob yuav tsum ntsuas qhov txaus ntshai thiab cov txiaj ntsig ntawm cov tshuaj tua kab mob, ib yam li lwm cov tshuaj kho mob.
Nws tau hais tias "Yog tias peb tsis pom ib qho txiaj ntsig ntxiv rau nws, ces peb tsuas yog nthuav tawm tib neeg rau qhov tsis tsim nyog txaus ntshai," nws hais. “Tsis muaj dab tsi los nrog noj su dawb. Nws yog ib qho tseem ceeb uas yuav tsum tau xav txog cov tshuaj tua kab mob zoo ntawm qhov koob tshuaj rau lub sijhawm kom raug. "
Nws kuj tau hais tias qee cov tshuaj tua kab mob tuaj yeem txo qhov mob ua rau muaj kev phiv, ua rau qee tus neeg mob zoo dua. Qhov no kuj yog lub ntsiab lus uas qee cov neeg mob pib sim nrog kev kho mob uas cov tshuaj tseem ceeb tsis paub txog.
Cov neeg mob sim cov kev kho tsis zoo
Cashman, nyob hauv Cataract, Wisconsin kuj raug kuaj mob Bartonella, los yog Cat khawb kab mob, thiab tau mus txog tsib xyoos ntawm kev kho mob "systemic, holistic", uas suav nrog ntau hom tshuaj ntsuab, tshuaj tua kab mob, koob tshuaj vitamin C thiab tshuaj ntxiv. Nws kuj tau txais kev kho ozone thiab laser kho rau qhov mob nyem. Tam sim no nws yuav luag tsis muaj tsos mob, tab sis tseem cuam tshuam nrog txha nraub qaum.


Stevens pom ob tus kws kho mob Lyme-literate hauv Wisconsin uas tau kawm nyob rau hauv Western thiab lwm yam tshuaj. Nws hais tias nws koom nrog Rov ua npaws, Tus mob Babesiosis thiab Bartonella. Nws hais tias nws cov kev kho mob yog tus kheej heev, thiab nws cov kws kho mob tweak nws cov kev kho mob ib ntus. Nyob rau ntawm ib kis, Stevens nyob rau ntau tshaj 40 hom tshuaj ntsuab thiab tshuaj ntxiv.
Nws tau hais tias "Kuv ua pov thawj tias kuv tau zoo dua los ntawm txhua qhov kev kho tshuaj ntsuab," nws hais. "Kuv tsis tau siv tshuaj tua kab mob rau plaub lossis tsib lub hlis."
Bertolasi tau tig mus rau tus kws kho mob Lyme uas tau kho nws tus phooj ywg nrog cov tsos mob zoo sib xws. Dhau li Lyme, nws kuj tau kuaj mob Bartonella. Nws tau ua tiav 14 lub hlis ntawm cov tshuaj tua kab mob. Tam sim no, dhau li kev noj tshuaj ntsuab, Bertolasi ua raws li kev noj zaub mov nruj tsis suav nrog cawv, khoom noj siv mis, gluten thiab qab zib kom txo tau qhov mob hauv nws lub cev.

Nws hais tias nws tsawg kawg yog 80% zoo dua li ib xyoos dhau los. Nws nco tau me ntsis rov qab los. Txawm li cas los xij, lub paj hlwb pos huab waxes thiab wanes - zoo li mob hauv nws pob qij txha thiab sab nraub qaum.
Croteau tau kuaj tsis zoo nrog peb qhov kev kuaj kab mob Lyme, tab sis nws tau kuaj pom los ntawm tus kws kho mob Lyme-literate nrog Bartonella thiab "nug" kab mob Lyme. Tus kws kho mob tau sau nws doxycycline, ua rau muaj qhov tshwm sim loj heev uas cov neeg mob Lyme muaj qee zaum ntsib thaum kho.
Thaum Croteau pom nws tus kheej cev xeeb tub, tus kws kho mob tau hais tias nws noj amoxicillin thiab clindamycin hauv koob tshuaj tsawg thaum nws cev xeeb tub. Nws tau tso tseg tsis noj lawv tom qab yug nws tus menyuam thib ob thaum lub Kaum Hlis 2021 thiab tau muaj tsos mob tsis pub dhau ob lub hlis tom ntej. Croteau tau hais tias nws cov tsos mob tau rov qab los txij li Lub Ib Hlis, suav nrog kev qaug zog thiab lub hlwb pos huab, caj dab txhav, mob taub hau thiab xeev siab. Nws saib xyuas nws tus menyuam mos hauv tsev thiab tsis tau pib kho vim muaj kev txwv nyiaj txiag.
'Tus neeg nplua nuj tus kab mob'
Txij li cov kab mob Lyme tsis yog tus kab mob uas tau lees paub, nws nyuaj kom tau txais kev pov hwm kev pov hwm, yog li cov neeg mob feem ntau daig them nyiaj tawm ntawm hnab ris rau kev kho mob.
Pauley, uas nyob hauv Woodstock, Illinois, tseem tab tom nrhiav kev kho mob pheej yig.
Nws cov tsos mob zoo li dementia ua rau nws tsis tuaj yeem ua haujlwm txuas ntxiv ua tus kws kho tsiaj, thiab nws tau tso nws txoj haujlwm kho tsiaj hauv xyoo 2020. Yav dhau los, nws tau tso nws tus kws kho mob txoj haujlwm hauv La Crosse thiab rov qab mus rau Illinois.
"Nws nyuaj," nws hais. "Kuv tau mus los ntawm cov neeg nruab nrab-sab saud mus rau txoj kab kev txom nyem."
Nws tau mus ntsib tus kws kho mob Lyme hauv Milwaukee thaum Lub Yim Hli, thaum nws tseem xav tias muaj Bartonella. Pauley raug them $525 toj ib teev rau tus nqi sib tham thawj zaug, tsis suav cov nqi kuaj thiab tshuaj ntxiv. Nws chim siab thaum hnov tus kws kho mob hais tias nws yog "tus neeg nplua nuj tus kab mob."
"Nws nyuaj rau nkag siab txog ib tus kws kho mob uas them nyiaj zoo li Beverly Hills txoj kev ua neej nyob hauv Midwest," nws hais. "Peb tsis yog neeg ua yeeb yam, thiab kuv tsis tau them 30 lab ib zaj yeeb yaj kiab."
Stevens tau hais tias nws tus nqi nruab nrab ntawm lub hnab tshos txij li $ 25,000 txog $ 50,000 ib xyoos. "Nws yog ib qho kev nyuaj siab loj rau peb," nws hais. "Qhov no yog vim li cas ntau tus neeg tsis tuaj yeem zoo dua, vim lawv tsis tuaj yeem them taus."
Cashman paub txog lub nra nyiaj txiag mob Lyme cov neeg mob dais, ib yam nkaus.
Nws kwv yees tias nws tau siv $ 150,000 tawm ntawm hnab tshos rau kev kho mob uas nws thiab nws tus txiv - uas kuj yog tus neeg mob Lyme mob ntev - tau noj ntau xyoo. Cashman tau nrhiav txoj hauv kev los txo cov nqi los ntawm, piv txwv li, yuav phaus ntawm cov tshuaj hauv av thiab ua nws tus kheej cov tshuaj ntsiav hauv tsev.
Txawm hais tias tag nrho tsib tus poj niam raug xam phaj los ntawm Wisconsin Watch tau sim cov kev kho mob tsis zoo, lawv hais tias lawv tsis ntseeg txog leej twg uas lees tias lawv tus mob muaj peev xwm kho tau sai.

Bertolasi tau hais tias "(Yog tias nws) tsuas yog kho sai kom tau nyiaj, thiab kuv tsuas yog leery ntawm nws," Bertolasi tau hais.
Thiab lawv tab tom siv lawv cov kev paub los pab lwm tus. Pauley tau dhau los ua tus tawm tswv yim rau cov nqi kho mob qis dua. Bertolasi tab tom sau phau ntawv Lyme-phooj ywg rau cov zaub mov txawv uas tau ua haujlwm rau nws.
Txawm hais tias Stevens tau hais tias ua tus neeg mob Lyme mob ntev yog "zoo li txoj haujlwm puv sijhawm," nws xav kom tib neeg paub tias muaj kev cia siab.
Stevens tau hais tias "Koj tuaj yeem ua tau zoo heev, tab sis koj tuaj yeem ua tau zoo dua," Stevens hais. "Nws yooj yim heev rau txoj kev 'Kuv pluag' tab sis nws muaj peev xwm ua tau zoo dua. Muaj kev cia siab. Koj tuaj yeem ncav cuag kev zam txim."
Lub nonprofit Wisconsin Watch (www.WisconsinWatch.org) koom tes nrog WPR, PBS Wisconsin, lwm cov xov xwm tshaj tawm thiab University of Wisconsin-Madison Tsev Kawm Ntawv Xov Xwm thiab Kev Sib Txuas Lus. Txhua yam haujlwm tau tsim, tshaj tawm, tshaj tawm lossis tshaj tawm los ntawm Wisconsin Watch tsis tas yuav cuam tshuam cov kev xav lossis kev xav ntawm UW-Madison lossis ib qho ntawm cov koom tes.